Abigail is one year old

Yesterday Abby defied the worst-case prognosis from doctors and celebrated her first birthday. We decided to take her out for the day as a family and made the trip up to London to visit the Science Museum. OK, so the venue was aimed more at Becky and Josh (and Matt!) but it was really nice to just to be out for the day together. Abby continues to do well at home, although today she appears to be getting the beginnings of a cold.

We are currently being given support by our physiotherapist, homecare team, occupational therapist and a postural management clinic about the next stage of Abigail’s car seating and special needs pram. We’ve also recently been accepted for support by a very specialist paediatric hospice in Kent. This excellent resource enables us all to stay for a few days as a family with activities and stimulation for Abby and the other children, or for us to use the centre for respite care for Abigail whilst we go away for a time. The quality of care and support there is widely acclaimed so it’s good to have that available to us. The photos were taken yesterday to mark Abby’s birthday.