Abigail home - but we're not sure why

Quite a bit of confusion this afternoon when Nix went in to the hospital to visit Abby. In an uncharacteristic breakdown in communication, Nix was told that Abigail would be going home today and was asked whether she’d received a phone call to let her know. We hadn’t. Nix returned home to get Abby’s things ready and then went back to the hospital to collect her, still none the wiser as to the rationale for discharging her after her big epileptic seizure yesterday.

Nix tried to speak to a doctor but none were available. Nurses explained that they had taken a blood sample on Tuesday to check the levels of medication in Abby’s blood and although they were lower than expected, dosages had been increased and these would take a few days to work into Abby’s system. We also understand that Abigail had passed the test of going another 24 hours without a major fit, but we remain a little concerned that there was a major seizure yesterday after nearly 48 clear hours. We wonder whether Abigail can really be described as ‘stable’ after just another day. We were also told that the QE would liaise with Guy’s again before Abigail was discharged and we’re not sure whether this has been done.

Obviously it’s great to have Abby home and Becky and Josh were very excited to see Nix arrive home with her this evening. But for the moment it remains a bit of a mystery for us why medical staff felt that a discharge was appropriate today. Neither of us particularly want to end up at A&E tonight if Abigail is still susceptible to major fitting. Only time will tell, of course. Hopefully we’ll be able to get the full facts from Abby’s consultant over the next few days and we have an appointment with her next week anyway. In the meantime, it’s lovely to have her home again and we hope we get another long stint together as a family. The photo above was taken just a few minutes ago and it shows a very proud big sister Rebekah with a not so little sister Abigail!