Home once again

Just a very quick update to say that Abigail has been discharged and arrived home at lunchtime today along with a vast range of milks and medicines. She remains on a naso-gastric tube for feeding and we have been taught how to use this properly – we will also be attempting to reintroduce oral feeds in the coming days and weeks. Doctors feel that Abby has improved markedly in terms of her severe fitting and that she is now well enough to be cared for at home. The other brief news is that a conclusive eye test will be performed in the next few days at King’s in London, and also that Abby’s anti-convulsant drug levels have been increased once more. Today is a good day although it’s clearly the start of a long road ahead. I’ll send a fuller update soon.